Today was an improvement from yesterday. First they were going to hold off on R's radiation treatment and let the pain mgt. get more in place and then the Oncology Radiation dr. came up and talked to R since the experience was so so so bad yesterday - he had a new plan - however - the new plan involved re-mapping of the front and laying on his back. We scheduled the "bolus" (boost of pain med) to be given when we were on the way out the door to the treatment - but when we got down there - we had to wait and our wonderful nurse actually came down to the Cancer center and administed a second dose just to keep him comfortable so we didn't have any mishaps like yesterday - so it all happened today and it was thankfully uneventful. We were both quite relieved when he finally made it back upstairs and in his bed.
We didn't get moved today because the Oncology floor is full at the moment. We are ok with that because our wonderful nurse is back on duty again tomorrow. I tell her if we ever get to go home - she's going with us.
He's been out of bed doing some walking - and he does pretty good. He's a little slow getting up and down but he can do it. All in his time. If the pain would just ease up - we might be able to explore some options of bringing him home. Thankful tonight for a better day. Thankful that he did get a treatment. Thankful for all of you who are out there for all of us.
This comment has been removed by the author.
ReplyDeleteAm ever grateful that you have a wonderful nurse...they are priceless!!! I am so happy to hear that things were managed well yesterday. Please know there are patient advocates @ all hospitals and don't hesitate to get one involved in the care process so things continue to move forward and not backward. Pain is something that can be managed they just have to keep working on it and find things that will do it. No is not answer to the patient and it's ok to express your needs and dissatisfaction. Maybe Randy can get home soon with some home nursing help. I know it's been a huge blessing for me to have eyes and ears around that know what to expect and they do evals. Love and continued prayers go your way. Susan, may the Lord continue to give you strength, peace, guidance and wisdom and you continue the roll as care provider, wife, friend, worker, homemaker, etc. You are wearing many hats and you need the support too. I see how much of a toll it takes when I look at John and how he's cared for me 5 1/2 weeks. XOXOXO
ReplyDelete