First full day of HH went well for R. I went out and checked on him around noon and stayed for a bit and then returned after work. He was doing fine. His spirits are up. His appetite is good. He has been getting himself up and walking. They have a ton of volunteers there and they do a multitude of little jobs from baking cookies to setting and talking with you, cooking, and all sorts of stuff. There was a group that came in with therapy dogs. Tomorrow is "The Healer" - if you wish for him to work with you - he has a non touch pain mgt/stress/therapy where he shows you how you use your energy to help you feel better. More about that later after I hear how it went.
We met the Dr. tonight and he had actually set on the "tumor board" (guess the dr's love a challenge such as this) and discussed R's case long before he met him. He's got some ideas on pain mgt. to simplify what we are doing now. For starters today they removed his IV in his arm and he now has this little thin needle that goes into his stomach muscles with the medication that was in his IV. So he has a tiny tube coming from that on one side and the epi cath tube on the other side so he has to make sure he's got it all in order when he gets up to move. The goal is to possibly substitute another medication and get rid of that all together and that would be wonderful. He will continue to see the Dr. 3-4 times a week in the HH. We both liked him and he's straight forward with answers and information.
The ulitmate goal is to get him home and that could happen soon if he keeps doing what he's doing now. If we go home - the visiting nurse service comes to us and does the same thing they are doing there. Pray for strength for all of us. Pray that his "good day" streak continues for many days to come. Continue to pray for a miracle. Again, we are blessed to have you all. Thank you for your continued support for each one of us.
He is at this point accepting visitors. I'll warn you - he'll talk your leg off. He's very sociable right now which is awesome to see. He may even take you on a tour of the home or walk you to the sunroom for coffee. The HH encourages us to use the home as we would our own. If you are lucky you just might get a cookie fresh out of the oven. The grandkids would love that! Good night all - I need to end this day.
So Awesome..
ReplyDeleteIt's a wonderful place and the workers and volunteers are there because they love people and want to help. I am every grateful you have that available to you both!
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